Aug 07, 2019
New Patient and Expert Videos
We are excited to announce the release of new patient and expert videos on the Alliance for Fertility Preservation website! At one of our Stakeholders’ Meetings this spring in Austin, Texas, we had the opportunity to bring together patients, advocates, and healthcare providers from across the state to share ideas and experiences about...
Major Victory for Cancer Patients as New York Includes Coverage for Fertility Preservation in 2020 Budget
The New York State Legislature and Governor Andrew Cuomo have just finalized the state’s 2020 budget, which provides for the coverage of all medically necessary fertility preservation procedures by ALL commercial insurers. It also provides for IVF coverage by large group health insurance plans. This extension of coverage marks a tremendous ga...
Treatments for Cancer and Sickle Cell Disease in Boys: Making Sure Their Fertility is Protected
Recently, scientists discovered that certain treatments for cancer and sickle cell disease destroy the germ cells that eventually go on to develop into sperm in the te...
Alliance for Fertility Preservation on Children's Cause for Cancer Advocacy Webinar
In June 2018, our Executive Director, Joyce Reinecke participated in a Webinar for the Children’s Cause for Cancer Advocacy Group. George Dahlman, the CEO of Children’s Cause for Cancer Advocacy Group described the group as, “…focused on public policy issues. While we primarily deal with Washington, there are a great many issues that can’t be...
Calling All Survivors: Take a Study that Will Help Your Fellow Future Patients
The Alliance for Fertility Preservation wanted to make you aware of an important and insightful study to understand how young women who have completed cancer treatment make decisions about their fertility, reproductive health, and planning for future parenthood. This is, of course, something we’re passionate about, which is why we wan...
AFP’s Response to FAFTA and Being an Advocate
Being an advocate takes hard work and dedication.
You need to be committed not just when you feel you’ve had a major accomplishment but especially when you feel like there’s still work that needs to be done.
If you’re in New York and have been following the Fair Access to Fertility Treatment Act (FAFTA), you know that near t...
The Poppoff Radio Show with Mary Jane Popp interviews AFP Executive Director Joyce Reinecke, J.D.
Joyce Reinecke, our Executive Director, is a guest on the fast-paced two hour Magazine-style Show, "The Popp of Show" hosted by Mary Jane Popp. In this segment, Joyce shares her own cancer diagnosis in her twenties, how it impacted her fertility and how it inspired her to become an infertility advocate for the 70,000 young people diagnosed e...
Making An Impact in Fertility Preservation Legislation in Maryland
One of the many objectives the Alliance for Fertility Preservation has been to share stories of those who have been diagnosed with or survived cancer and faced family-building challenges as a result. We aim to share these stories not only with other newly-diagnosed patients and survivors so they can learn about their options but also, to hel...
It’s National Infertility Awareness Week (#NIAW) and Alliance for Fertility Preservation Needs You to Flip the Script!
April 22nd – April 28th is National Infertility Awareness Week (NIAW) and the theme is, “Flip the Script”. RESOLVE, the National Infertility Association, a group dedicated to ensuring that all people challenged in their family building journey reach resolution through knowle...
Global Framework for Oncofertility Care
Interview with FUTuRE FERTILITY Study and G-Force: Global Framework for Oncofertility Care
The Alliance for Fertility Preservation recently had the opportunity to sit and speak with Brigitte Gerstl, the International Program Manager of FUTuRE FERTILITY Study and G-Force: Global Framework for Oncofert...
What Options (and When) to Consider for Fertility Preservation
Recently, our very own Jennifer Levine, contributed to an abstract on premature menopause and the reproductive implications in survivors of childhood cancer. Dr. Levine has been active in helping...
Opportunity and Rights for New York's Women and Girls: Access to Fertility Treatment.
The Alliance for Fertility Preservation had the extreme pleasure of attending the press conference where the Office of Governor Andrew M. Cuomo unveiled his “Opportunity and Rights Agenda for New York's Women and Girls, 2018.”
It was a packed audience made up of some men, but mostly women at the New-York Historical Society on Janua...
Get to Know (and help support) the Fair Access to Fertility Treatment (FAFTA)
Risa A Levine is an attorney in private practice in New York City. She serves on the Board of Directors of RESOLVE: The National Infertility Association and advocates on behalf of fertility patients on the state and federal level.
You're 29. You eat organic eggs and salads (mostly), but love your French fries...
I’m Not Grateful for All of it, but I am Grateful for What I Learned
Jeannine Canino Bieda - My name is Jeannine and I live in the Chicago area with my husband of 9 years. I was diagnosed with breast cancer at 36 with no family history, which changed the course of my life. I decided to share my story via social media to not only help me heal, but to hopefully save a life or two. I have been working...
The Power of A Patient: Achieving Fertility Preservation Coverage for Connecticut
Earlier this year, Connecticut became the first state to pass legislation that guarantees insurance coverage for standard fertility preservation services. For patients who need these services due to a medical necessity – including undergoing chemotherapy or other fertility-threat...
New! Patient Voices: Experiences with Cancer and Fertility
We are excited to announce our new website feature, Patient Voices, which shares patient and survivor experiences with cancer and fertility.
If you are a patient or survivor, please share your story about how concerns about your future fertility or ability to become a parent affected you, your loved ones, your treatment decisions, y...
Partner Perspectives on Fertility Preservation
Dr. Teresa K. Woodruff, PhD, Allison Goetsch, MS, CGC, and graduate student Kendra Frome, BS, have designed this survey to capture information about the fertility preservation process from an often-overlooked perspective – that of the cancer patient’s partner. Obviously, a patient’s partner has an important stake in the out...
Cervivor School: A advocacy training program for cervical cancer survivors
Cervivor School is headed to Louisville, KY!
Cervivor is a 501(c)(3) organization that is dedicated to raising awareness about cervical cancer. One of its key programs is “Cervivor School.” It is a program that allows cervical cancer survivors to take their own experience and use it to help create positive ...
Share Your Story! Narrative Inquiry in Bioethics calling for patient stories about cancer and fertility
The Journal Narrative Inquiry in Bioethics has chosen to dedicate an issue to stories about patients and families who faced fertility issues as a result of a cancer diagnosis and treatment.
Because children and young adults may have their future ability to become a parent compromised by cancer treatment, it is important that they under...
The Samfund: Scholarship Applications Now Open
The Samfund is a nonprofit organization that provides financial grants to young adult cancer survivors for a wide range of cancer-associated costs, including for reproductive services and for family building.
Family building grants fall into two categories:
- Grants to help with the storage of eggs, embryos or sperm for...
New article identifies female patients don’t receive enough fertility information
Many young adult female cancer survivors want children in the future, but, for a variety of reasons, are unable to undergo fertility preservation before treatment. For those who maintain ovarian function after treatment but are at risk for premature ovarian failure, fertility preservation after treatment may be an option. However, patients c...
CALL TO ACTION! Support Pending Fertility Preservation Legislation in New York
The primary barrier for cancer patients seeking to preserve their fertility is cost.
Sperm banking, embryo freezing and egg freezing cost thousands of dollars. Because these services are rarely covered by insurance, patients are typically left paying out of pocket in order to access these services. For many, especially while in the mid...
New Survey about Needs for Services to Help with Fertility and Sexuality Issues in Younger Breast Cancer Survivors
Dr. Leslie Schover, a pioneering researcher in the field of sexuality and fertility after cancer, has launched a new survey about the specific reproductive health needs of women who were diagnosed with breast cancer before menopause.
Dr. Schover is conducting the survey to better understand the ongoing needs of young cancer patients f...
Supreme Court Refuses to Hear Illinois Disputed Embryos Case
The Supreme Court of the United States refused to take up a case involving disputed embryos that were created for fertility preservation purposes.
The case, Szafranski v. Dunston, has garnered national attention. It arose after Karla Dunston, a doctor, was diagnosed in 2009 with lymphoma. Because her course of treatment presented the r...
Is there a fertility window after cancer treatment?
Young cancer survivors want to be able to have their own families after cancer treatment. For girls and young women, cancer treatments can cause infertility and early ovarian failure. But for many young survivors, there is be a window of time in which they are still fertile, which we’ll call the “reproductive window”.
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