Fertility Preservation Toolkit

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Infertility and Advancing Therapeutic Solutions for IVF

Externally-Led Patient-Focused Drug Development
(EL-PFDD) Meeting

March 26, 2026

Make your voice heard!

Submit a comment below for possible inclusion in the EL-PFDD Voice of the Patient report. (You will only be identified by first name, last initial or may request to remain anonymous.) The comment period is open until April 27, 2026.

Please respond to the questions below or share and elaborate on your experiences. Help us answer these questions and have your voice heard.

Session 1 – Living with Infertility or Fertility Loss: Impacts on Daily Life
  • When did you become aware of your infertility or potential for fertility loss?
  • What has had the biggest impact on your life (physical, emotional, and/or psychosocial)?
  • Does infertility or concerns about your future fertility affect daily life? Has this changed over time?
  • Are there activities, goals, or life plans that have been altered as a result?
  • When you think about the future, what worries or uncertainties concern you most?
Session 2 – Current & Future Approaches to Preserve or Restore Fertility
  • What treatments have you/your loved one used to try to preserve fertility or to build a family? How well did these work?
  • What are/were the most significant downsides (physical and/or emotional) side effects?
  • How did you weigh the pros/cons of fertility treatment?
  • Would you participate in clinical trials for fertility-protective or restorative therapies?
  • What improvements or types of therapies would you like to see in the future?

Thank You

We are able to organize this event and bring patients together from across the country to share their experiences thanks to the generous support of our corporate sponsor, EMD Serono, and through a partnership with the Cade Foundation.