Fertility Preservation Toolkit

Thank you for your interest in our toolkits. Please read our Terms of Use carefully as we include information that applies to all our toolkits.

All toolkits are publicly available for individual use without licensing or royalty fees. Such use of toolkits is “single use,” meaning solely for the User’s research, clinical, educational, or other application. User’s email may be added to an email distribution list to receive scientific and updated information about the toolkit(s).

We encourage use of our toolkits. User agrees not to adapt, alter, amend, abridge, modify, condense, make derivative works, or translate toolkits without prior written permission from the Provider. User agrees not to sell or incorporate toolkits into materials that could be sold without prior written consent from the Provider. To inquire about permissions, please email info@a4fp.org.


Research Studies

Open Study

Exploring Awareness of Fertility Preservation Options in Patients Receiving Treatments That May Affect Fertility. Role of Genetic Counselors.

Are you an adult who has received medical treatment in the US for cancer? We invite you to participate in an anonymous survey to help improve communication about fertility preservation options.

Research Study Details:
– Purpose: To explore patients’ awareness of how medical treatments may affect fertility (the ability to have
biological children) and identify helpful resources for future patients.
– Duration: 10-15 minutes survey
– Eligibility: Adults treated in the US for cancer, thalassemia, or sickle cell disease
– Researcher: Alejandra Bernal, Genetic Counseling Student, University of Pittsburgh
 
Your Participation Matters:
– Completely voluntary and anonymous
– May help future patients’ awareness of fertility preservation before treatment
– May help improve healthcare providers’ communication with patients
 
Take the Survey:
If you started treatments as a child, when answering questions about interactions with healthcare providers, you may either share your family’s experience (including what was discussed with your parents) or select “don’t remember/don’t know”. The link can’t be tracked and can’t be used to identify respondents.

English Version
Versión en Español
Open Study

Counseling and Use of Surrogacy Among Cancer Survivors

This study is being conducted by researchers at the Warren Alper School of Medicine at Brown University. It is open to female (assigned at birth) cancer survivors who were diagnosed at age 15-45. Participants must have completed active treatment and also be over age 18.

Go to Study
Open Study

Roadmap to Parenthood Survey

This study is being conducted by researchers at the Stanford Cancer Institute. It is open to female (assigned at birth) cancer survivors who are between ages 18-45. Participants must have completed their primary treatment (but being on maintenance or hormonal therapy is ok).

Go to Study